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Today, the European Parliament agreed to create an EU Health Data Space #EHDS against the votes of #Pirates, selling out patient rights. This means:
- Healthcare providers can access our health records without our consent
- No right to opt-out of cross-border access to our health records
- Big Pharma, Big Tech and government institutions will have access to our identifiable (pseudonomised) health records without our consent, even to DNA, psychotherapy, sexual disorders etc.
- We don‘t even have a right to object to such access under national schemes
Check out how your MEPs voted: https://mepwatch.eu/9/vote.html?v=168444
Read my comment: https://www.patrick-breyer.de/en/pirates-call-for-a-halt-to-plans-for-the-eu-health-data-space-2/
@echo_pbreyer How can the average patient not only #object but literally #ban every institution form participating with ones' data?
Espechally given how shit #Healthcare #ITsec is...
See #ChangeHealthcare / #UnitedHealthcare ...
On Wednesday, MEPs adopted their position on creating a European Health Data Space to ease access to personal health data and boost secure sharing.
The new European Health Data Space (EHDS) would empower citizens to control their personal healthcare data and facilitate secure sharing for research and altruistic (i.e. not-for-profit) purposes. Plenary adopted the report, which will serve as Parliament’s negotiating mandate in talks with Council on the final form of the legislation, with 516 votes in favour, 95 against, and 20 abstentions.
@echo_pbreyer How can individuals help? Can we write to anyone, sign anything, fund any initiative?
@xananax Afraid it's too late...
@echo_pbreyer Is this legal to do? (It is not first time EU try to implement some thing which is not legal.)
@echo_pbreyer you mention in your article: "unless the patient expressly objects" - do we have an idea how objections will be made?