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Tom Kindlon<p>Jarred Younger PhD 13-minute video: New paper: The top treatments for ME/CFS and Long-COVID</p><p><a href="https://www.youtube.com/watch?v=FfGPbay9cwg" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">youtube.com/watch?v=FfGPbay9cw</span><span class="invisible">g</span></a></p><p><span class="h-card" translate="no"><a href="https://fedigroups.social/@mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://fedigroups.social/@longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVIDBrain</span></a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroPASC</span></a></p><p>1/</p>
Irish ME/CFS Association<p>2/2<br>Full announcement of our donation of €9000 to Solve ME/CFS Initiative to support their research</p><p>Read more about their important work here:<br><a href="https://solvecfs.org" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">solvecfs.org</span><span class="invisible"></span></a></p><p><a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a></p>
Irish ME/CFS Association<p>We're delighted to again support the Solve ME/CFS Initiative &amp; their important research.</p><p>Thanks to all our donors &amp; fundraisers plus others who have supported us in any way</p><p>See next message for more details</p><p><a href="https://mastodon.ie/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://mastodon.ie/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://mastodon.ie/tags/MyalgicE" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicE</span></a> <a href="https://mastodon.ie/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://mastodon.ie/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://mastodon.ie/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a></p><p>1/</p>
Tom Kindlon<p>Lots of half-truths but it is all driven by their belief in points 8-10.</p><p>But the evidence isn’t there BPS approaches (CBT/GET/rehab/etc) are an effective recovery tool for ME/CFS &amp; in fact there's a lot of evidence they’re not</p><p><a href="https://www.coffi-collaborative.com/post/response-to-decodeme-preprint" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">coffi-collaborative.com/post/r</span><span class="invisible">esponse-to-decodeme-preprint</span></a></p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>From the US:</p><p>The Role of Neuroinflammation in Post-Exertional Malaise Among Chronic Multisymptom Illness</p><p><a href="https://asset.library.wisc.edu/1711.dl/MPB4EKFKWOZYY8L/R/file-5a4ec.pdf" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">asset.library.wisc.edu/1711.dl</span><span class="invisible">/MPB4EKFKWOZYY8L/R/file-5a4ec.pdf</span></a></p><p>Screenshot from latest Science for ME weekly update</p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a></p>
Tom Kindlon<p>Killer cell immunoglobulin-like receptor (KIR) alleles suggested to be associated with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)</p><p><a href="https://www.sciencedirect.com/science/article/abs/pii/S0889159125003332" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">sciencedirect.com/science/arti</span><span class="invisible">cle/abs/pii/S0889159125003332</span></a></p><p>Screenshot from latest Science for ME weekly update</p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>UK: University of Edinburgh: PRIME project manager post advertised</p><p><a href="https://elxw.fa.em3.oraclecloud.com/hcmUI/CandidateExperience/en/sites/CX_1001/job/13023" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">elxw.fa.em3.oraclecloud.com/hc</span><span class="invisible">mUI/CandidateExperience/en/sites/CX_1001/job/13023</span></a></p><p>Screenshot from latest Science for ME weekly update</p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>From ME Research UK:</p><p>A small study has investigated whether pyridostigmine might increase hand grip strength in people with ME/CFS. Interestingly, the research team also considered whether the drug had an impact on orthostatic intolerance.</p><p>Find out more: <a href="https://bit.ly/3HMGFBx" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/3HMGFBx</span><span class="invisible"></span></a></p><p><a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a></p>
thomi<p><a href="https://unordnung.net/misc/2025/09/cfs-dailies-10/" rel="nofollow noopener" target="_blank"><span class="invisible">https://</span><span class="ellipsis">unordnung.net/misc/2025/09/cfs</span><span class="invisible">-dailies-10/</span></a></p><p>Nach den 20 Minuten Hotline warten, bin ich so fertig mit den Nerven und... <a href="https://mastodon.sdf.org/tags/Barrierefreiheit" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Barrierefreiheit</span></a> <a href="https://mastodon.sdf.org/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cfs</span></a> <a href="https://mastodon.sdf.org/tags/ableism" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ableism</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/alwaystired" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>alwaystired</span></a> <a href="https://mastodon.social/tags/sotired" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>sotired</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/chronicfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicfatigue</span></a> <a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fatigue</span></a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cfs</span></a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.social/tags/chronicfatiguesyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicfatiguesyndrome</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a></p>
Pete Ashton<p>I need to purchase a very basic pavement mobility scooter so I can get back into the world with chronic fatigue <a href="https://social.coop/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cfs</span></a> and of course this is something I have absolutely no idea about. Just need to go a mile or so to the shops. Anyone want to shout “no! stop!" before I hit buy on this wee beastie? <a href="https://www.zippermobilityscooters.com/folding-3-wheel-electric-mobility-scooter-with-seat" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">zippermobilityscooters.com/fol</span><span class="invisible">ding-3-wheel-electric-mobility-scooter-with-seat</span></a></p><p><a href="https://social.coop/tags/PeopleWithDisabilities" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PeopleWithDisabilities</span></a> <a href="https://social.coop/tags/Disabled" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Disabled</span></a></p>
Tom Kindlon<p>Study of OTC supplement for ME/CFS symptoms. Home based. No travel. Participants paid up to $100 (gift card). US and Canada.</p><p>Hydrogen Water Intervention With Heart Rate Variability as an Outcome Biomarker in ME/​CFS</p><p>Image from September AMMES newsletter</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>Unwilling or unable? Interpreting effort task performance in myalgic encephalomyelitis/chronic fatigue syndrome</p><p><a href="https://pmc.ncbi.nlm.nih.gov/articles/PMC12202612/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">pmc.ncbi.nlm.nih.gov/articles/</span><span class="invisible">PMC12202612/</span></a></p><p>Critique of part of the NIH inpatient study paper</p><p>Image from September AMMES newsletter</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>"Simple blood test could provide first reliable diagnosis for ME"</p><p>Links to this paywalled article:<br><a href="https://www.thetimes.com/uk/healthcare/article/simple-blood-test-could-provide-first-reliable-diagnosis-for-me-ml05sfbpw" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thetimes.com/uk/healthcare/art</span><span class="invisible">icle/simple-blood-test-could-provide-first-reliable-diagnosis-for-me-ml05sfbpw</span></a></p><p>June press release:<br><a href="https://www.ed.ac.uk/news/scale-of-how-mecfs-affects-blood-revealed" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">ed.ac.uk/news/scale-of-how-mec</span><span class="invisible">fs-affects-blood-revealed</span></a></p><p>Comment: findings are interesting but am unconvinced it will become a diagnostic test</p><p>Image from September AMMES newsletter</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a></p>
Tom Kindlon<p>New CDC-funded multi-centre study:</p><p>Autonomic Dysfunction in ME/CFS</p><p><a href="https://www.mdpi.com/2077-0383/14/17/6269" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">mdpi.com/2077-0383/14/17/6269</span><span class="invisible"></span></a></p><p>"ME/CFS patients exhibit a substantial autonomic symptom burden that correlates with greater illness severity"</p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>New factsheet: "The immune system and ME/CFS"</p><p>"This article is written for GPs and other healthcare professionals."</p><p>PDF: <a href="https://www.meresearch.org.uk/wp-content/uploads/2025/09/MECFS-and-immune-system-GP-factsheet_EI-2.pdf" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meresearch.org.uk/wp-content/u</span><span class="invisible">ploads/2025/09/MECFS-and-immune-system-GP-factsheet_EI-2.pdf</span></a></p><p>HTML: <a href="https://www.meresearch.org.uk/factsheet-the-immune-system-and-me-cfs/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">meresearch.org.uk/factsheet-th</span><span class="invisible">e-immune-system-and-me-cfs/</span></a></p><p><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Tom Kindlon<p>From ME Research UK:</p><p>Read more about the findings of a study from Canada and Norway exploring the role of SMPDL38 in the underlying disease mechanisms of ME and its clinical relevance: <a href="https://bit.ly/46fcXgL" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="">bit.ly/46fcXgL</span><span class="invisible"></span></a></p><p><a href="https://disabled.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> <a href="https://disabled.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cfs</span></a> <a href="https://disabled.social/tags/pwme" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>pwme</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span></p>
Insecurity Princess 🌈💖🔥<p>CFS is exhausting. On days like today, I can barely finish washing my hair before I'm so exhausted that I collapse into bed to rest before I finish drying off.</p><p>But I wouldn't have started washing my hair unless I thought I had the energy.</p><p>Some days I can walk a kilometer and do almost normal things. Some days even mental exertion is too much, let alone social or physical.<br><a href="https://infosec.exchange/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/chronicallyill" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicallyill</span></a> <a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/fibromemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibromemes</span></a> <a href="https://mastodon.social/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.social/tags/spoonie" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonie</span></a> <a href="https://mastodon.social/tags/chronicillnesslife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnesslife</span></a> <a href="https://mastodon.social/tags/spoonielife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>spoonielife</span></a> <a href="https://mastodon.social/tags/chroniclife" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chroniclife</span></a> <a href="https://mastodon.social/tags/fatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fatigue</span></a> <a href="https://mastodon.social/tags/chronicfatigue" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicfatigue</span></a> <a href="https://mastodon.social/tags/mecfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mecfs</span></a> <a href="https://mastodon.social/tags/cfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cfs</span></a></p>
Tom Kindlon<p>"The importance of understanding rest: How my experience of rest as an athlete clashed with my experience of rest as a patient" by Oonagh Cousins</p><p><a href="https://www.thereforme.uk/p/the-importance-of-understanding-rest" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">thereforme.uk/p/the-importance</span><span class="invisible">-of-understanding-rest</span></a></p><p>Image from AMMES September 2025 Newsletter</p><p><span class="h-card" translate="no"><a href="https://a.gup.pe/u/mecfs" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>mecfs</span></a></span><br><a href="https://disabled.social/tags/MyalgicEncephalomyelitis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MyalgicEncephalomyelitis</span></a> <a href="https://disabled.social/tags/ChronicFatigueSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicFatigueSyndrome</span></a> <a href="https://disabled.social/tags/MEcfs" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MEcfs</span></a> <a href="https://disabled.social/tags/CFS" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>CFS</span></a> <a href="https://disabled.social/tags/PwME" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwME</span></a> <span class="h-card" translate="no"><a href="https://a.gup.pe/u/longcovid" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>longcovid</span></a></span><br><a href="https://disabled.social/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://disabled.social/tags/PASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PASC</span></a> <a href="https://disabled.social/tags/PwLC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PwLC</span></a> <a href="https://disabled.social/tags/postcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid</span></a> <a href="https://disabled.social/tags/postcovid19" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>postcovid19</span></a> <a href="https://disabled.social/tags/LC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LC</span></a> <a href="https://disabled.social/tags/Covidlonghaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Covidlonghaulers</span></a> <a href="https://disabled.social/tags/PostCovidSyndrome" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>PostCovidSyndrome</span></a> <a href="https://disabled.social/tags/longhaulers" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>longhaulers</span></a> <a href="https://disabled.social/tags/COVIDBrain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>COVIDBrain</span></a> <a href="https://disabled.social/tags/NeuroPASC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NeuroPASC</span></a><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/chronicillness" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>chronicillness</span></a></span><br><span class="h-card" translate="no"><a href="https://a.gup.pe/u/spoonies" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>spoonies</span></a></span></p>