digitalcourage.social

Jan R. BoehnkeWith view to <a href="https://mastodon.social/tags/census" class="mention hashtag" rel="nofollow noopener" target="_blank">#census</a> data and collection, maybe important to point out that there is a consultation ongoing until 30.09. informing the content of the Scottish <a href="https://mastodon.social/tags/Census" class="mention hashtag" rel="nofollow noopener" target="_blank">#Census</a> 2031 <a href="https://consult.gov.scot/national-records-of-scotland/scotlands-census-2031/" rel="nofollow noopener" translate="no" target="_blank">https://consult.gov.scot/national-records-of-scotland/scotlands-census-2031/</a><a href="https://mastodon.social/tags/Scotland" class="mention hashtag" rel="nofollow noopener" target="_blank">#Scotland</a> <a href="https://mastodon.social/tags/Alba" class="mention hashtag" rel="nofollow noopener" target="_blank">#Alba</a> <a href="https://mastodon.social/tags/Survey" class="mention hashtag" rel="nofollow noopener" target="_blank">#Survey</a> <a href="https://mastodon.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://mastodon.social/tags/ScotGov" class="mention hashtag" rel="nofollow noopener" target="_blank">#ScotGov</a>

WHNVaccine access and eligibility are shifting. Dr. Eric Feigl-Ding explains the latest updates and what they mean for protecting yourself and your community.Watch the full interview here: <a href="https://youtu.be/NVQUHshRiCQ" rel="nofollow noopener" translate="no" target="_blank">https://youtu.be/NVQUHshRiCQ</a>.<a href="https://forall.social/tags/COVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#COVID</a> <a href="https://forall.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener" target="_blank">#COVID19</a> <a href="https://forall.social/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#PublicHealth</a> <a href="https://forall.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://forall.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCOVID</a> <a href="https://forall.social/tags/InfectionPrevention" class="mention hashtag" rel="nofollow noopener" target="_blank">#InfectionPrevention</a> <a href="https://forall.social/tags/Vaccines" class="mention hashtag" rel="nofollow noopener" target="_blank">#Vaccines</a>

WHNCOVID isn’t over—and the data makes that clear. New variants are shifting the landscape, and staying informed is key to staying protected. Watch Dr. Joe Eastman give a breakdown of what the numbers are really telling us: <a href="https://youtu.be/NVQUHshRiCQ" rel="nofollow noopener" translate="no" target="_blank">https://youtu.be/NVQUHshRiCQ</a>.<a href="https://forall.social/tags/COVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#COVID</a> <a href="https://forall.social/tags/COVID19" class="mention hashtag" rel="nofollow noopener" target="_blank">#COVID19</a> <a href="https://forall.social/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#PublicHealth</a> <a href="https://forall.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://forall.social/tags/LongCOVID" class="mention hashtag" rel="nofollow noopener" target="_blank">#LongCOVID</a> <a href="https://forall.social/tags/InfectionPrevention" class="mention hashtag" rel="nofollow noopener" target="_blank">#InfectionPrevention</a>

LeanpubHackers, Breaches and the Value of Health Data <a href="https://leanpub.com/privacy-in-digital-health" rel="nofollow noopener" translate="no" target="_blank">https://leanpub.com/privacy-in-digital-health</a> <a href="https://mastodon.social/tags/books" class="mention hashtag" rel="nofollow noopener" target="_blank">#books</a> <a href="https://mastodon.social/tags/hackers" class="mention hashtag" rel="nofollow noopener" target="_blank">#hackers</a> <a href="https://mastodon.social/tags/health" class="mention hashtag" rel="nofollow noopener" target="_blank">#health</a> <a href="https://mastodon.social/tags/healthcare" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthcare</a> <a href="https://mastodon.social/tags/healthdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthdata</a> <a href="https://mastodon.social/tags/science" class="mention hashtag" rel="nofollow noopener" target="_blank">#science</a> <a href="https://mastodon.social/tags/healthtech" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthtech</a>Get a picture of the state of privacy today in healthcare, and about the vision digital health can bring to the future. Find it on Leanpub!

SIB Swiss Bioinformatics🚀 SIB is helping build the next gen of 🇪🇺 health infrastructure via UNCAN-Connect. 🔐 Secure, AI-curated access to high-quality cancer data across 30 countries — to speed up discovery of urgently needed therapies. 📊 Supporting EU & Swiss health missions. See more 👉 <a href="https://tinyurl.com/mvwhsydz" rel="nofollow noopener" translate="no" target="_blank">https://tinyurl.com/mvwhsydz</a> <a href="https://mstdn.science/tags/UNCAN" class="mention hashtag" rel="nofollow noopener" target="_blank">#UNCAN</a> <a href="https://mstdn.science/tags/SIB" class="mention hashtag" rel="nofollow noopener" target="_blank">#SIB</a> <a href="https://mstdn.science/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a>

NGI SargassoDriving global impact through collaboration: <a href="https://fosstodon.org/tags/NGISargasso" class="mention hashtag" rel="nofollow noopener" target="_blank">#NGISargasso</a> & Dynaccurate launch a cross-dissemination partnership! 👏 💊 <a href="https://fosstodon.org/tags/Dynaccurate" class="mention hashtag" rel="nofollow noopener" target="_blank">#Dynaccurate</a> is the EU counterpart of the <a href="https://fosstodon.org/tags/NGISargassoInnovator" class="mention hashtag" rel="nofollow noopener" target="_blank">#NGISargassoInnovator</a> Medications Data Interoperability Project, providing a ‘single source of truth’ for medications data internationally by using a future-proof data architecture incorporating <a href="https://fosstodon.org/tags/AI" class="mention hashtag" rel="nofollow noopener" target="_blank">#AI</a>, ontologies & <a href="https://fosstodon.org/tags/blockchain" class="mention hashtag" rel="nofollow noopener" target="_blank">#blockchain</a>.Read all about it here: <a href="https://ngisargasso.eu/2025/08/29/driving-global-impact-through-collaboration-ngi-sargasso-and-dynaccurate-launch-cross-dissemination-partnership/" rel="nofollow noopener" translate="no" target="_blank">https://ngisargasso.eu/2025/08/29/driving-global-impact-through-collaboration-ngi-sargasso-and-dynaccurate-launch-cross-dissemination-partnership/</a><a href="https://fosstodon.org/tags/InternetOfHumans" class="mention hashtag" rel="nofollow noopener" target="_blank">#InternetOfHumans</a> <a href="https://fosstodon.org/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://fosstodon.org/tags/AIinHealthCare" class="mention hashtag" rel="nofollow noopener" target="_blank">#AIinHealthCare</a>

Petra van CronenburgI ask the pharmacy what I do if I need medication but can't drive to them yet."Just send us the prescription by e-mail and we will deliver it to your home. Here's our email address, it's on Google mail." Find the mistake. 🙄 🤢 <a href="https://mastodon.online/tags/privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#privacy</a> <a href="https://mastodon.online/tags/Google" class="mention hashtag" rel="nofollow noopener" target="_blank">#Google</a> <a href="https://mastodon.online/tags/dataSecurity" class="mention hashtag" rel="nofollow noopener" target="_blank">#dataSecurity</a> <a href="https://mastodon.online/tags/security" class="mention hashtag" rel="nofollow noopener" target="_blank">#security</a> <a href="https://mastodon.online/tags/healthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthData</a>

rijoJury finds Meta violated privacy law collecting health data <a href="https://ppc.land/jury-finds-meta-violated-privacy-law-collecting-health-data/" rel="nofollow noopener" translate="no" target="_blank">https://ppc.land/jury-finds-meta-violated-privacy-law-collecting-health-data/</a> <a href="https://frankfurt.social/tags/PrivacyLaw" class="mention hashtag" rel="nofollow noopener" target="_blank">#PrivacyLaw</a> <a href="https://frankfurt.social/tags/Meta" class="mention hashtag" rel="nofollow noopener" target="_blank">#Meta</a> <a href="https://frankfurt.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://frankfurt.social/tags/DataProtection" class="mention hashtag" rel="nofollow noopener" target="_blank">#DataProtection</a> <a href="https://frankfurt.social/tags/FertilityApp" class="mention hashtag" rel="nofollow noopener" target="_blank">#FertilityApp</a>

Nonya "Lethal Precision" Bidniss :CIAverified: 🇺🇸Abysmally unethical. 140,000 Danish babies born between 1981-2008 had their DNA sequenced and enrolled in a long term study of psychiatric disorders without family knowledge or consent. Now under new ethics rules the researchers have sent opt-out notifications, shocking the affected individuals. <a href="https://infosec.exchange/tags/privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#privacy</a> <a href="https://infosec.exchange/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://infosec.exchange/tags/science" class="mention hashtag" rel="nofollow noopener" target="_blank">#science</a> <a href="https://www.science.org/content/article/blood-taken-danish-babies-ended-huge-genetic-study-without-consent" rel="nofollow noopener" translate="no" target="_blank">https://www.science.org/content/article/blood-taken-danish-babies-ended-huge-genetic-study-without-consent</a>

Pyrzout :vm:Trump Administration and Big Tech want you to share your health data <a href="https://www.malwarebytes.com/blog/news/2025/07/trump-administration-and-big-tech-want-you-to-share-your-health-data" rel="nofollow noopener" translate="no" target="_blank">https://www.malwarebytes.com/blog/news/2025/07/trump-administration-and-big-tech-want-you-to-share-your-health-data</a> <a href="https://social.skynetcloud.site/tags/Trumpadministration" class="mention hashtag" rel="nofollow noopener" target="_blank">#Trumpadministration</a> <a href="https://social.skynetcloud.site/tags/healthdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthdata</a> <a href="https://social.skynetcloud.site/tags/Privacy" class="mention hashtag" rel="nofollow noopener" target="_blank">#Privacy</a> <a href="https://social.skynetcloud.site/tags/News" class="mention hashtag" rel="nofollow noopener" target="_blank">#News</a>

Center for Health Data Science📊🧬Are you a clinician doing research with real-world data? 👩‍⚕️ 💊 Let <a href="https://datasci.social/tags/SUNDDataLab" class="mention hashtag" rel="nofollow noopener" target="_blank">#SUNDDataLab</a> at UCPH <a href="https://datasci.social/tags/HeaDS" class="mention hashtag" rel="nofollow noopener" target="_blank">#HeaDS</a> support your analysis needs!From <a href="https://datasci.social/tags/StatisticalModeling" class="mention hashtag" rel="nofollow noopener" target="_blank">#StatisticalModeling</a> to <a href="https://datasci.social/tags/DataVisualization" class="mention hashtag" rel="nofollow noopener" target="_blank">#DataVisualization</a> and <a href="https://datasci.social/tags/Python" class="mention hashtag" rel="nofollow noopener" target="_blank">#Python</a>/#R workflows—we’ve got you covered💪 No time or coding experience? No problem. On-demand, expert data help tailored for busy clinical researchers.🌐 <a href="https://www.heads.ku.dk/datalab/" rel="nofollow noopener" translate="no" target="_blank">https://www.heads.ku.dk/datalab/</a> 📧 datalab@sund.ku.dk<a href="https://datasci.social/tags/MedicalResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#MedicalResearch</a> <a href="https://datasci.social/tags/ClinicalResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#ClinicalResearch</a> <a href="https://datasci.social/tags/DataScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#DataScience</a> <a href="https://datasci.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a>

Steve Dustcircle 🌹We caught 4 more <a href="https://masto.ai/tags/states" class="mention hashtag" rel="nofollow noopener" target="_blank">#states</a> sharing <a href="https://masto.ai/tags/personal" class="mention hashtag" rel="nofollow noopener" target="_blank">#personal</a> <a href="https://masto.ai/tags/healthdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthdata</a> with <a href="https://masto.ai/tags/BigTech" class="mention hashtag" rel="nofollow noopener" target="_blank">#BigTech</a><a href="https://themarkup.org/pixel-hunt/2025/06/17/we-caught-4-more-states-sharing-personal-health-data-with-big-tech" rel="nofollow noopener" translate="no" target="_blank">https://themarkup.org/pixel-hunt/2025/06/17/we-caught-4-more-states-sharing-personal-health-data-with-big-tech</a>

Innovative Health Initiative👩‍💻 Real-world <a href="https://mastodon.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> and evidence (RWD/RWE) have immense potential to advance the development and evaluation of medicines, medical devices, and drug-device combinations. Guidance on how this could work exists, but is high level, and implementing it in practice is far from easy. 👋 Meet new IHI project GREG, which aims to to turn this situation around by generating guidance and tools to boost the impact of <a href="https://mastodon.social/tags/RWE" class="mention hashtag" rel="nofollow noopener" target="_blank">#RWE</a> in Europe. 👉 <a href="https://europa.eu/!nGJj9x" rel="nofollow noopener" translate="no" target="_blank">https://europa.eu/!nGJj9x</a><a href="https://mastodon.social/tags/IHITransformingHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#IHITransformingHealth</a> <a href="https://mastodon.social/tags/HorizonEU" class="mention hashtag" rel="nofollow noopener" target="_blank">#HorizonEU</a>

Headlines AfricaAfrica: Africa Sets Course to Strengthen and Harmonise Health Data Governance: [Africa CDC] The Africa Centre for Disease Control (Africa CDC) is set to kick off action towards strengthening and harmonising the framework of policies, procedures, and practices that ensure healthcare data is managed, protected, and used responsibly throughout its lifecycle -- health data governance -- across the continent. <a href="http://newsfeed.facilit8.network/TM3sZJ" rel="nofollow noopener" translate="no" target="_blank">http://newsfeed.facilit8.network/TM3sZJ</a> <a href="https://journa.host/tags/Africa" class="mention hashtag" rel="nofollow noopener" target="_blank">#Africa</a> <a href="https://journa.host/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://journa.host/tags/DataGovernance" class="mention hashtag" rel="nofollow noopener" target="_blank">#DataGovernance</a> <a href="https://journa.host/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#PublicHealth</a> <a href="https://journa.host/tags/AfricaCDC" class="mention hashtag" rel="nofollow noopener" target="_blank">#AfricaCDC</a>

Jan R. Boehnke"In June 2025, we heard the latest in a list of acts that is weakening the UK’s evidence base for policy-making: The Health <a href="https://mastodon.social/tags/Survey" class="mention hashtag" rel="nofollow noopener" target="_blank">#Survey</a> for England, which has been running since 1991, will be discontinued after 2025."Oyinlola Oyebode presents a personal view on the importance of the Health Survey for England <a href="https://blog.ukdataservice.ac.uk/future-population-health-surveys/" rel="nofollow noopener" translate="no" target="_blank">https://blog.ukdataservice.ac.uk/future-population-health-surveys/</a>and encourages people to take part in the consultation about its replacement <a href="https://studies.ons.gov.uk/s/Future_HSE/" rel="nofollow noopener" translate="no" target="_blank">https://studies.ons.gov.uk/s/Future_HSE/</a><a href="https://mastodon.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://mastodon.social/tags/HealthEconomics" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthEconomics</a>

Digital Research Academy🎧 The final episode of Research Data: Handle with Care is out now!If you’ve ever wondered how researchers responsibly handle health data, or how data protection and open science can work hand in hand, this series is for you.📖 Learn more about the episodes: <a href="https://www.nfdi4health.de/en/news-eng/latest-news/podcast-research-data-handle-with-care.html" rel="nofollow noopener" translate="no" target="_blank">https://www.nfdi4health.de/en/news-eng/latest-news/podcast-research-data-handle-with-care.html</a>Thanks to everyone who contributed their insights. This was a amazing collaboration with the NFDI4Health Consortium!<a href="https://mastodon.social/tags/ResearchData" class="mention hashtag" rel="nofollow noopener" target="_blank">#ResearchData</a> <a href="https://mastodon.social/tags/OpenScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#OpenScience</a> <a href="https://mastodon.social/tags/DataStewardship" class="mention hashtag" rel="nofollow noopener" target="_blank">#DataStewardship</a> <a href="https://mastodon.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://mastodon.social/tags/NFDI4Health" class="mention hashtag" rel="nofollow noopener" target="_blank">#NFDI4Health</a> <a href="https://mastodon.social/tags/PodcastRecommendation" class="mention hashtag" rel="nofollow noopener" target="_blank">#PodcastRecommendation</a>

Open Data InstituteA new white paper from Sport England and The Open Data Institute shows how better access to physical activity data can help health care teams signpost people to trusted local options – and take pressure off the NHS. <a href="https://theodi.org/news-and-events/news/better-use-of-physical-activity-data-could-improve-health-outcomes-and-reduce-pressure-on-nhs-says-white-paper/" rel="nofollow noopener" translate="no" target="_blank">https://theodi.org/news-and-events/news/better-use-of-physical-activity-data-could-improve-health-outcomes-and-reduce-pressure-on-nhs-says-white-paper/</a><a href="https://mastodon.social/tags/NHS" class="mention hashtag" rel="nofollow noopener" target="_blank">#NHS</a> <a href="https://mastodon.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> <a href="https://mastodon.social/tags/PublicHealth" class="mention hashtag" rel="nofollow noopener" target="_blank">#PublicHealth</a> <a href="https://mastodon.social/tags/ExerciseIsMedicine" class="mention hashtag" rel="nofollow noopener" target="_blank">#ExerciseIsMedicine</a>

Innovative Health Initiative📢 How can projects maximise the <a href="https://mastodon.social/tags/regulatory" class="mention hashtag" rel="nofollow noopener" target="_blank">#regulatory</a> impact of their results? Together with the Critical Path Institute, we published a paper in Nature Reviews Drug Discovery that draws on our experience of managing consortia. The key lessons? Projects need: 📑 A clear regulatory strategy 👩‍💻 A <a href="https://mastodon.social/tags/HealthData" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthData</a> management plan aligned with regulatory goals 📗 A sustainability plan to ensure data availability after the project ends 💬 Early engagement with regulators Find out more 👉 <a href="https://europa.eu/!nKyFyQ" rel="nofollow noopener" translate="no" target="_blank">https://europa.eu/!nKyFyQ</a>

Politico.eu (Unofficial RSS)Doctors to refer NHS to data watchdog over feeding patient data to AI <a href="https://www.politico.eu/article/doctors-nhs-data-watchdog-patient-data-ai-uk-england-covid-pandemic-labour/?utm_source=RSS_Feed&utm_medium=RSS&utm_campaign=RSS_Syndication" rel="nofollow noopener" target="_blank">https://www.politico.eu/article/doctors-nhs-data-watchdog-patient-data-ai-uk-england-covid-pandemic-labour/?utm_source=RSS_Feed&utm_medium=RSS&utm_campaign=RSS_Syndication</a> <a class="hashtag" href="https://social.espeweb.net/tag/artificialintelligence" rel="nofollow noopener" target="_blank">#ArtificialIntelligence</a> <a class="hashtag" href="https://social.espeweb.net/tag/aihealthtechnology" rel="nofollow noopener" target="_blank">#AIhealthtechnology</a> <a class="hashtag" href="https://social.espeweb.net/tag/technologyuk" rel="nofollow noopener" target="_blank">#TechnologyUK</a> <a class="hashtag" href="https://social.espeweb.net/tag/healthcare" rel="nofollow noopener" target="_blank">#Healthcare</a> <a class="hashtag" href="https://social.espeweb.net/tag/healthdata" rel="nofollow noopener" target="_blank">#Healthdata</a> <a class="hashtag" href="https://social.espeweb.net/tag/healthcare" rel="nofollow noopener" target="_blank">#HealthCare</a> <a class="hashtag" href="https://social.espeweb.net/tag/medicines" rel="nofollow noopener" target="_blank">#Medicines</a> <a class="hashtag" href="https://social.espeweb.net/tag/doctors" rel="nofollow noopener" target="_blank">#Doctors</a>

ᴅʀ. ᴍᴏᴡɪɴᴄᴋᴇʟ'ꜱ📝 New post: 'Unmasking Long Covid: PCA & Clustering Analysis of Symptom Syndromes'🧛 See how data-driven and domain-knowledge approaches align to define distinct symptom clusters and inform management strategies. 👀 <a href="https://drmo.site/RmNDXg" rel="nofollow noopener" translate="no" target="_blank">https://drmo.site/RmNDXg</a> <a href="https://fosstodon.org/tags/rstats" class="mention hashtag" rel="nofollow noopener" target="_blank">#rstats</a> <a href="https://fosstodon.org/tags/healthdata" class="mention hashtag" rel="nofollow noopener" target="_blank">#healthdata</a> <a href="https://fosstodon.org/tags/longcovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#longcovid</a>

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