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#Lupus

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lups_i<p>Freitag Abend hatte ich - noch anlässlich meines Geburtstags - Besuch von der Frauengruppe. Ich machte eine Käseplatte, es gab Wein und wir hatten es nett.<br>Am Samstag viel Kinderhin- und her, abends ass ich mit dem Kind am Strand einen Burger.<br>Und zum Abschluss der Feierlichkeiten hatte ich am Sonntag die Frauen der Werden und Vergehen-Gruppe eingeladen.<br><a href="https://troet.cafe/tags/Freitagszeuch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Freitagszeuch</span></a> <a href="https://troet.cafe/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://troet.cafe/tags/chronischkrank" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronischkrank</span></a> <a href="https://troet.cafe/tags/tagebuchbloggen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tagebuchbloggen</span></a> <a href="https://troet.cafe/tags/RA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RA</span></a> </p><p><a href="https://www.lupus-live.de/?p=13987" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">lupus-live.de/?p=13987</span><span class="invisible"></span></a></p>
Jon<p>The husband returned home with a cold. He masks when he travels and tested negative for Covid, but opted to sleep downstairs tonight. </p><p>The downside of such thoughtfulness is that the dogs, very happy that he’s home, have opted to sleep with him!</p><p><a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a></p>
Jon<p>This summer's heat and humidity have been especially tough on my lupus. I use an app to track my energy levels each morning on a scale of 1-5, where 5 means I can do a lot before hitting the fatigue wall, and lower scores mean fewer energy reserves. Yesterday I scored a 2, today just a 1 - haven't seen numbers that low in months! </p><p>More flooding expected this afternoon too.</p><p><a href="https://wtop.com/weather-news/2025/07/this-weekends-weather-pattern-brings-more-of-the-same-to-dc-region/#WashingtonDC" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">wtop.com/weather-news/2025/07/</span><span class="invisible">this-weekends-weather-pattern-brings-more-of-the-same-to-dc-region/#WashingtonDC</span></a> <a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> </p><p><a href="https://wandering.shop/tags/WashingtonDC" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>WashingtonDC</span></a> <a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> <a href="https://wandering.shop/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a></p>
lups_i<p>Samstag trafen wir uns mit dem grossen Kind in Hamburg und machten uns einen schönen Tag! Erst bummelten wir durch die Lange Reihe, dann machten wir Fotos bei 3D Trickart, liefen noch durch einige Geschäfte und beendeten den Tag mit griechischen Tapas, die man in Form von langen Brettern mit Schüsseln als All you can eat bekommt. Wir waren alle reichlich satt.<br><a href="https://troet.cafe/tags/Freitagszeuch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Freitagszeuch</span></a> <a href="https://troet.cafe/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://troet.cafe/tags/chronischkrank" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronischkrank</span></a> <a href="https://troet.cafe/tags/tagebuchbloggen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tagebuchbloggen</span></a> <a href="https://troet.cafe/tags/RA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RA</span></a> </p><p><a href="https://www.lupus-live.de/?p=13974" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">lupus-live.de/?p=13974</span><span class="invisible"></span></a></p>
Chronic Illness Humor Funny<p><a href="https://mastodon.social/tags/chronicillnesshumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnesshumor</span></a> <a href="https://mastodon.social/tags/chronicillnessmemes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillnessmemes</span></a> <a href="https://mastodon.social/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a> <a href="https://mastodon.social/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a> <a href="https://mastodon.social/tags/autoimmunehumor" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunehumor</span></a> <a href="https://mastodon.social/tags/autoimmunememes" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunememes</span></a> <a href="https://mastodon.social/tags/autoimmunedisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunedisease</span></a> <a href="https://mastodon.social/tags/autoimmunedisorder" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunedisorder</span></a> <a href="https://mastodon.social/tags/rheumatoidarthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>rheumatoidarthritis</span></a> <a href="https://mastodon.social/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> <a href="https://mastodon.social/tags/mctd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mctd</span></a> <a href="https://mastodon.social/tags/uctd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>uctd</span></a> <a href="https://mastodon.social/tags/myositis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>myositis</span></a> <a href="https://mastodon.social/tags/sjogrens" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>sjogrens</span></a> <a href="https://mastodon.social/tags/scleroderma" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>scleroderma</span></a></p>
JADe (he, him)<p>ENG: A 1:1 blend of THC:CBD (10mg/ml each cannabinoid) taken for three months caused significant improvement in pain scores, stiffness levels, sleep quality and fibromyalgia symptom scores:</p><p><a href="https://www.sciencedirect.com/science/article/abs/pii/S0003496725033758" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">sciencedirect.com/science/arti</span><span class="invisible">cle/abs/pii/S0003496725033758</span></a></p><p>ESP: Mezcla 1:1 de THC:CBD (10mg/ml de cada cannabinoide) tomada x tres meses causó una mejora significativa en las puntuaciones de dolor, niveles de rigidez, calidad del sueño y las puntuaciones de los síntomas de la fibromialgia</p><p><a href="https://mastodon.cr/tags/fibromyalgia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibromyalgia</span></a> <a href="https://mastodon.cr/tags/viral" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>viral</span></a> <a href="https://mastodon.cr/tags/bacterialdisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>bacterialdisease</span></a> <br><a href="https://mastodon.cr/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://mastodon.cr/tags/RheumatoidArthritis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RheumatoidArthritis</span></a> <a href="https://mastodon.cr/tags/depression" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>depression</span></a> <a href="https://mastodon.cr/tags/depressiontreatment" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>depressiontreatment</span></a> <br><a href="https://mastodon.cr/tags/mooddisorders" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mooddisorders</span></a> <a href="https://mastodon.cr/tags/chronicpain" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicpain</span></a> <br><a href="https://mastodon.cr/tags/thc" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>thc</span></a> <a href="https://mastodon.cr/tags/cbd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cbd</span></a> <a href="https://mastodon.cr/tags/cannabismedicine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cannabismedicine</span></a> <br><a href="https://mastodon.cr/tags/cannabinoidresearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cannabinoidresearch</span></a> <a href="https://mastodon.cr/tags/fibro" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>fibro</span></a><br><a href="https://mastodon.cr/tags/cannabismedical" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>cannabismedical</span></a> <a href="https://mastodon.cr/tags/marijuana" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>marijuana</span></a><br><a href="https://mastodon.cr/tags/immunefunction" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>immunefunction</span></a> <a href="https://mastodon.cr/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a><br><a href="https://mastodon.cr/tags/LongCovid" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>LongCovid</span></a> <a href="https://mastodon.cr/tags/chronicillness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronicillness</span></a></p>
JonSelfie
lups_i<p>Am Wochenende hatte ich Dienst, so dass nicht viel geschah. Daneben natürlich Hausarbeit, das kleine Kind war nun ein Wochenende beim Vater war krank und wollte das lieber zuhause sein. Während der Arbeitssamstag noch recht schnell verging, war der Sonntag zäh wie Kaugummi. Ich guckte das erste Mal um 8.27 h auf die Uhr und da war echt noch ganz schon viel Zeit übrig ;).<br><a href="https://troet.cafe/tags/Freitagszeuch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Freitagszeuch</span></a> <a href="https://troet.cafe/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://troet.cafe/tags/chronischkrank" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronischkrank</span></a> <a href="https://troet.cafe/tags/tagebuchbloggen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tagebuchbloggen</span></a> <a href="https://troet.cafe/tags/RA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RA</span></a> </p><p><a href="https://www.lupus-live.de/?p=13953" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">lupus-live.de/?p=13953</span><span class="invisible"></span></a></p>
Jon<p>RED LETTER DAY!!!!</p><p>For the first time since my preliminary diagnosis on 6/5/24, I was able to get up, take my meds, AND TAKE A SHOWER!!!</p><p>For the past year, my morning clients have seen me unshowered and unshaved. I have a thick beard, but it's very white, and against my pink skin you really can't tell. Also, my buzz cut means no night time cowlicks develop!</p><p>I've taken to showering midday when my energy is highest, but oh it feels so good to be up and showered!</p><p><a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> <a href="https://wandering.shop/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a></p>
Will<p><span class="h-card" translate="no"><a href="https://social.hackerspace.pl/@viq" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>viq</span></a></span> <span class="h-card" translate="no"><a href="https://mastodon.social/@aceryz" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>aceryz</span></a></span> <span class="h-card" translate="no"><a href="https://mastodon.social/@nixCraft" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>nixCraft</span></a></span> wow nice! So if i can get that vaccine for my SLE (MCTD actually), then it might cure my t1d also?<br>Sign me up!</p><p>(For extra credit in willing to be cured of the hypothyroid also... 🐵😉)</p><p>So... I'd love to read more about that, if you have a fave source of info...?</p><p>(Ps- good luck everybody!)<br><a href="https://fosstodon.org/tags/t1d" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>t1d</span></a> <a href="https://fosstodon.org/tags/sle" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>sle</span></a> <a href="https://fosstodon.org/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> <a href="https://fosstodon.org/tags/MCTD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MCTD</span></a> <a href="https://fosstodon.org/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a></p>
César Pose<p>Today Clara left this world 😢. She was my patient, disciple, and friend. I had the good fortune and honor of being her guide and one of her therapists. She was 65, and her last 12 years, struggling with autoimmune diseases, were the best, spiritually. I have great admiration for her spiritual strength. In 2013, she had a prognosis of two or three years to live, and she lived 12 more. She knew and enjoyed seeing her children married, the birth of her grandchildren, and a life of love and peace with her husband.<br>And today she left with her eyes open. She understood and accepted the impermanence and the suchness of things and left at peace with herself.<br>I am grateful for such an example of life.<br>Thank you so much, Clara, for everything I learned!<br>🙏🏻🙏🏻🙏🏻</p><p><a href="https://infosec.exchange/tags/autoimmunedisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmunedisease</span></a> <a href="https://infosec.exchange/tags/esclerodermia" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>esclerodermia</span></a> <a href="https://infosec.exchange/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> <a href="https://infosec.exchange/tags/raynaudsdisease" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>raynaudsdisease</span></a> <a href="https://infosec.exchange/tags/zen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>zen</span></a> <a href="https://infosec.exchange/tags/chinesemedicine" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chinesemedicine</span></a> <a href="https://infosec.exchange/tags/yiquan" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>yiquan</span></a> <a href="https://infosec.exchange/tags/qigong" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>qigong</span></a> <a href="https://infosec.exchange/tags/healthqigong" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>healthqigong</span></a></p>
lups_i<p>Mein Urlaub ist leider wieder vorbei, am Montag ein Spätdienst, Dienstag und Mittwoch hatte ich frei, um dann in ein laaaanges Dienstwochenende zu gehen - Spät, Spät, Früh, Früh, Früh heisst es bis Montag.<br>Mein jährlicher Mammographietermin stand an und so verbrachte ich meinen Dienstag nachmittag wieder im Herrenhaus, wo die Brustquetsche steht. Gna.<br><a href="https://troet.cafe/tags/Freitagszeuch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Freitagszeuch</span></a> <a href="https://troet.cafe/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://troet.cafe/tags/chronischkrank" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronischkrank</span></a> <a href="https://troet.cafe/tags/tagebuchbloggen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tagebuchbloggen</span></a> <a href="https://troet.cafe/tags/RA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RA</span></a> </p><p><a href="https://www.lupus-live.de/?p=13917" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">lupus-live.de/?p=13917</span><span class="invisible"></span></a></p>
StellarSnap<p>📸 Nova V462 Lupi Now Visible<br>A rare celestial event is underway in the southern sky. Nova Lupi 2025 is a thermonuclear explosion on a white dwarf, discovered mid-June and now visible with binoculars. Even more rare: Nova Velorum 2025 is visible too, making two simultaneous novas!</p><p>📅 July 3, 2025<br>📷 Credit: Matipon Tangmatitham (NARIT)</p><p><a href="https://mastodon.social/tags/APOD" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>APOD</span></a> <a href="https://mastodon.social/tags/Nova" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Nova</span></a> <a href="https://mastodon.social/tags/V462Lupi" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>V462Lupi</span></a> <a href="https://mastodon.social/tags/NovaVelorum" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NovaVelorum</span></a> <a href="https://mastodon.social/tags/MilkyWay" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>MilkyWay</span></a> <a href="https://mastodon.social/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://mastodon.social/tags/Vela" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Vela</span></a> <a href="https://mastodon.social/tags/Stargazing" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Stargazing</span></a> <a href="https://mastodon.social/tags/BinocularView" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>BinocularView</span></a> <a href="https://mastodon.social/tags/NightSky" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>NightSky</span></a> <a href="https://mastodon.social/tags/SpaceEvent" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SpaceEvent</span></a> <a href="https://mastodon.social/tags/Astronomy" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Astronomy</span></a> <a href="https://mastodon.social/tags/Astrophotography" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Astrophotography</span></a> <a href="https://mastodon.social/tags/SpaceScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>SpaceScience</span></a> <a href="https://mastodon.social/tags/StellarSnap" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>StellarSnap</span></a></p>
Jon<p>Looking up registered dietitians in network with my insurance is certainly eye opening. I'm uncomfortable making generalizations, but there seem to be three distinct groups: there's those who work out of a gym and whose focus is to help you meet your weight loss goals, there's the "integrative medicine" folks who do intuitive eating and work with eating disorders, and then there are my people: <br>the we're-gonna-save-your-kidneys dietitians. </p><p><a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a></p>
Jon<p>"The bill slashes Medicaid funding—undermining coverage for low-income adults, children, seniors, and people with serious and chronic conditions – making even more devastating cuts than the House-passed legislation."</p><p><a href="https://wandering.shop/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> <a href="https://wandering.shop/tags/autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>autoimmune</span></a> </p><p><a href="https://www.lupus.org/news/coalition-statement-on-HR1-senate-passage?utm_source=Mastodon&amp;utm_medium=social" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">lupus.org/news/coalition-state</span><span class="invisible">ment-on-HR1-senate-passage?utm_source=Mastodon&amp;utm_medium=social</span></a></p>
Jon<p>Three years ago I would have been posting about how much weight I could carry doing barbell squats but today I'm happy to announce that I've graduated from the extra light exercise bands to the light exercise bands when I do my simple clam shell exercises.</p><p>Progress is progress, and as long as it keeps me walking I'm happy! 💪 </p><p><a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> <a href="https://wandering.shop/tags/Autoimmune" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Autoimmune</span></a> <a href="https://wandering.shop/tags/ChronicIllness" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>ChronicIllness</span></a></p>
lups_i<p>Im Juni 2025<br>&nbsp;</p><p> standen weitere Hausbesichtigungen an<br> fuhr ich mit den Jungs nach Dänemark<br> besichtigten wir Sonderburg<br> gingen wir ins Universe<br> ging ich zum Zahnarzt<br> und zur Steuerberaterin<br> versuchte ich über das VAMV Einigung zu Umgang und Unterhalt zu erzielen<br> waren viele Gäste in der Ferienwohnung<br> hatte ich reichlich Dienste früh, spät und auch am Wochenende<br> - ging<br><a href="https://troet.cafe/tags/Monats%C3%BCbersicht" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Monatsübersicht</span></a> <a href="https://troet.cafe/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://troet.cafe/tags/chronischkrank" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronischkrank</span></a> <a href="https://troet.cafe/tags/tagebuchbloggen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tagebuchbloggen</span></a> <a href="https://troet.cafe/tags/R" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>R</span></a> </p><p><a href="https://www.lupus-live.de/?p=13858" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">lupus-live.de/?p=13858</span><span class="invisible"></span></a></p>
lups_i<p>Samstag erledigten wir den Wochenputz, ich telefonierte mit meinem Vater. Anschliessend fuhren wir ins Fitnessstudio, zurück zuhause, duschen und direkt in den Schlafanzug :). Gemütlich. Ich machte mir Gurkensalat, Eistee und Garnelen und hatte es gut.&nbsp;<br>Sonntag schlief ich aus und machte mir ein schönes Frühstück. Mittags sammelte ich das grosse Kind für eine kurze Stippvisite ein.<br><a href="https://troet.cafe/tags/Freitagszeuch" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Freitagszeuch</span></a> <a href="https://troet.cafe/tags/Lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Lupus</span></a> <a href="https://troet.cafe/tags/chronischkrank" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>chronischkrank</span></a> <a href="https://troet.cafe/tags/tagebuchbloggen" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>tagebuchbloggen</span></a> <a href="https://troet.cafe/tags/RA" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RA</span></a> </p><p><a href="https://www.lupus-live.de/?p=13905" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="">lupus-live.de/?p=13905</span><span class="invisible"></span></a></p>
Will<p><span class="h-card" translate="no"><a href="https://mastodon.me.uk/@pikesley" class="u-url mention" rel="nofollow noopener" target="_blank">@<span>pikesley</span></a></span> <br>Burns off some insulin, ya?</p><p>Idk. The sun brings on symptoms of my <a href="https://fosstodon.org/tags/mctd" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>mctd</span></a> <a href="https://fosstodon.org/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a> etc too ... which messes up my <a href="https://fosstodon.org/tags/bloodsugar" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>bloodsugar</span></a> too, so... not sure. </p><p>Good luck folks!</p>
Jon<p>A really beautiful blog post by Mia Mingus on the concept of access intimacy.</p><p>"Access intimacy is that elusive, hard to describe feeling when someone else “gets” your access needs. The kind of eerie comfort that your disabled self feels with someone on a purely access level. Sometimes it can happen with complete strangers, disabled or not, or sometimes it can be built over years."</p><p><a href="https://leavingevidence.wordpress.com/2011/05/05/access-intimacy-the-missing-link/" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://</span><span class="ellipsis">leavingevidence.wordpress.com/</span><span class="invisible">2011/05/05/access-intimacy-the-missing-link/</span></a></p><p><a href="https://wandering.shop/tags/disability" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disability</span></a> <a href="https://wandering.shop/tags/disabilityjustice" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>disabilityjustice</span></a> <a href="https://wandering.shop/tags/Deaf" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>Deaf</span></a> <a href="https://wandering.shop/tags/lupus" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>lupus</span></a></p>